SWLU Patient Participation Group

patient Group                                                       

What is the SWLU Patient Participation and Support Group?                                                         

The Patient Participation and Support Group (PPSG) provides a forum for people who have experienced our services to meet with the members of the Hepatology team to give feedback, so that the patients' voice is heard and contrbutes to the development of our services and research priorities. 

 

Why should I join?

Your experiences matter and your feedback is helpful to inform us what we are doing well and what we are not, so that we can continually improve our service. Furthermore, many of you have other skills that can contribute to our service and community e.g. developing and running a patient support group, reading and vetting our patient information leaflets, art and design work or helping to develop our business plans.

The SWLU is also active in clinical research and there are opportunities to become involved in the design and delivery of these studies.

 

How often does the Patient Participation and Support Group meet?

Meetings happen monthly.   

 

What is the virtual group?

Currently meetings are being carried out virtually via Zoom and our group has been rebranded as the "South West Liver Buddies". Hopefully this will allow the group to support one another on a regular basis despite geographical distance. The mission of the group is to offer friendship, support and non-medical advice for all liver patients and their carers at every stage of their journey with liver disease.

We also have the facebook group "South West Liver Unit and South West Liver Buddies" where information is shared and can be commented on.

 

How do I join?

If you wish to join the group please join through the facebook page or email liverbuddies@nhs.net and provide us with your name, address, email address and telephone number.

 

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