Display Patient Information Leaflets

Sensory Sensitivities around Type 1 Diabetes

Date issued: September 2026

Review date: September 2027

Leaflet section: Child Health

PDF: Sensory Sensitivities around Type 1 Diabetes.pdf [pdf] 1022KB

Children and Young People’s Psychological Health and Wellbeing Team 

Contents

How to use this workbook

  • This workbook is designed to share information about sensory sensitivities and help you understand whether you have any sensory challenges that affect your diabetes treatment.

  • You should read through the book with a trusted adult and fill in the work sheets to help you understand more about what your sensory needs may be.

  • Once you have completed the workbook, there is a clinic passport that you can fill in with what you have learnt about how sensory sensitivities may affect your diabetes treatment. You might find it helpful to give your doctor a copy of this so that they can add it to your notes and everyone can support your sensory needs.

  • You should take your time to go through this workbook. There is no need to complete it in one sitting, please go through it as and when you wish, in a way that best supports you.

Download and print off the PDF to fill out this workbook

Who is this booklet for?

Everybody experiences the world through their senses, from babies who explore by putting toys in their mouths, and calm down when being rocked, to grandparents who might have the TV on really loud, or notice feeling unsteady on their feet. Our senses help us to understand everyday life at every age. This is especially important for children and teenagers, as sensory experiences affect how we learn, focus, manage our emotions, and socialise. For young people living with long-term conditions such as diabetes, sensory awareness becomes even more important, as you need to recognise signs such as feeling shaky, dizzy, or tired, and get used to aspects of treatment such as finger prick testing, injections, or wearing monitors/pumps as part of your daily routine.

Who is this booklet for?

  • This booklet is for anyone with diabetes who has noticed sensory sensitivities in their daily lives.

  • Examples of sensory sensitivities include sensitivity to noise, lights, textures, smells, and tastes.

  • This booklet will give more information on each of the senses and common experiences of sensitivities.

  • Sensory sensitivities can occur in anyone.

  • Sensory sensitivities can be very common in those who are neurodivergent (e.g., have Autism or ADHD). However, they are still often experienced in those without.

  • There is information later in this booklet that is specifically tailored for those who are neurodivergent.

Sensory Needs

Spectrum of sensory experiences:

Sensory processing involves how the nervous system receives messages from the senses and turns them into responses. Differences in sensory processing can range from hypersensitivity to hyposensitivity. 

Hypersensitivity may cause people to be ‘over responsive’, finding everyday sensory experiences overwhelming. For example, bright lights, loud noises, strong smells and certain textures could cause discomfort or distress. As a result, the nervous system can become dysregulated.

Hyposensitivity or ‘under-responsiveness’ can mean that more intense sensory experiences are needed for someone to register sensations. Examples of how this could manifest could be a high pain threshold, seeking out strong flavours or a preference of deep pressure.

Your senses can often sit at different places on the spectrum of ‘sensory responses’. For example, you could have visual hyposensitivity (need more intense visual stimuli) as well as having auditory hypersensitivity (some sounds can be overwhelming or even painful). These sensitivities can change over time and may vary depending on factors such as stress, environment, physical health, and hormones. 

There are 8 different senses that can all have their own specific sensitivities. 

Sensory overload happens when someone with sensory sensitivity/sensitivities is exposed to more stimuli than they can comfortably process. This can lead to discomfort, overstimulation and a range of emotional and physical responses including anxiety, irritability, fatigue, difficulty concentrating, nausea, and temporary shutdown.

Table of general sensory sensitivity across 8 senses

 

Table of general sensory sensitivity across 8 senses
Sense Hypersensitivity Hyposensitivity
Sight Bright lights may give you discomfort or headaches You enjoy and look out for visually stimulating environments
Hearing Everyday sounds may feel too loud or distracting You might not notice or respond to sounds that others do
Touch Some textures or clothing may feel irritating or painful You may not feel pain or temperature changes as intensely
Smell Strong smells may make you nauseous or uncomfortable You might not notice strong smells that others find noticeable
Taste  Strong flavours might be overwhelming You might prefer strong flavours and enjoy spicy or flavourful foods
Body movement You may feel dizzy or uncoordinated with movement You may seek out movement activities like spinning or jumping
Balance You might experience motion sickness or fear of heights You might not notice when off-balance or may seek out balance challenges
Internal body signals You might focus too much on interpreting internal cues like hunger or thirst You might not recognize internal body signals, leading to missed cues like needing the toilet

 

Sensory sensitivities that may be tricky specifically in the context of diabetes:

 

Sensory sensitivities
Sense Hypersensitivity Hyposensitivity
Sight

Overwhelmed by visual input on medical devices (such as bright screen or flashing lights).

Difficulty with cluttered or complex displays and environment.

May miss visual cues on devices (e.g., CGM alerts, blood on test strip) and have low motivation to check devices.
Hearing

 

Alarms from CGMs or pumps may be distressing or triggering.

Sensitivity to clinic/hospital noise.

 

May not register alerts or alarms, needs louder or more obvious sound cues.
Touch Aversion to finger pricks, injections, adhesives from sensors or pumps. Discomfort with site rotation. Reduced awareness of site discomfort or irritation - may not notice site issues or sensor peeling.
Smell

Discomfort/ distress triggered by antiseptic wipes, insulin smell, or medical settings.

Could result in specific limited food preferences.

May not notice spoiled food or ketone-related breath odours (a potential diabetic ketoacidosis or DKA sign).
Taste

Strong aversions to required foods for treating lows (e.g., sugary gels, glucose tablets).

May struggle with food texture, perhaps having problems with the chalkiness of glucose tablets.

Craves strong flavours and may struggle with balanced diet.

Might not detect taste changes from high/low blood sugar.

Body Movement

Hyper-aware of body changes during highs/lows which may lead to misinterpreting and/or anxiety around subtle bodily sensations.

May not notice body position changes or awkward insulin delivery technique (rough movement may damage infusion sites).
Balance

Discomfort or dizziness during blood sugar highs/lows may trigger fear or anxiety. Sensitive to motion during physical activity.

May not notice balance issues associated with blood sugar changes.
Internal Body Signals

Overreacts to internal cues (e.g., hunger, thirst, rapid heartbeat), leading to anxiety or panic about blood sugar.

Poor awareness of highs/lows, hunger, or thirst; may miss signs of hypo- or hyperglycaemia until extreme.

 

Does any of this seem familiar to you? In the following information, there is a sensory checklist to help you figure out what you might need support with.

Pre-filled sensory Checklist

There are multiple ways you could use this checklist:

  1. Use it to help you talk about your senses with someone who helps you with your diabetes

  2. Colour any boxes that you identify with

  3. Add stickers/draw faces to show how you feel about each sense

  4. Use the blank template to add in your own experiences and use this one as an example if you get stuck!

Print off the PDF at the top of this page to fill out the blank template.

 

Pre-filled sensory Checklist
My Senses Feel a lot Feel little
Seeing (eyes) e.g., Bright screens or lights on my pump bother me e.g., I don’t always notice a number or alert on my screen
Hearing (ears) e.g., Beeping alarms are too loud or scary e.g., I might not hear alarms set for me
Touching (skin) e.g., Finger pricks, needles or sticky patches hurt a lot or feel ‘yucky’ e.g., I don’t always feel when something is wrong with my site
Smelling (nose) e.g., Certain smells (like cleaning wipes or insulin) make me feel sick e.g., When something is wrong (like bad breath) I don’t notice unusual smells
Tasting (mouth) e.g., Some sugary foods to treat lows taste too strong e.g., I want really strong flavours
Moving (the body) e.g., I quickly notice my body feeling weird e.g., I sometimes sit/lie on my pump and don’t feel it
Balance e.g., I feel dizzy or particularly scared when my blood sugar is low e.g., I don’t feel dizzy even when my sugar is low
Inside feelings (like hunger or pain) e.g., I feel my body strongly and sometimes worry about things I notice (like fast heartbeat) e.g., It’s hard to tell when I’m hungry or low

 

Reflection point!

It is important to recognise that everyone is different, and these are just examples of how someone who experiences sensory sensitivities may struggle with their diabetes management.

You may recognise many of these experiences in yourself or even notice challenges that aren’t mentioned here. Alternatively, you might only relate to one or two of them. Either way, this does not mean that your needs are less important. Using this knowledge of your sensory experience, those around you can work with you to make your diabetes management a more comfortable and supportive experience.

Neurodiversity

In the following information, we begin to use the terms Neurodiversity and Neurodivergence. It can be helpful to know the difference between these terms as they often get used interchangeably!

  • Neurodiversity is a term used to define natural variations in brain differences - applicable to everyone.

  • Neurodivergence is a term used to describe people whose brains process information differently from most people.

  • Neurotypical is a term used to describe people whose brains process information in line with the societal norm.

This video provides a good explanation for what we are talking about when we refer to neurodiversity and neurodivergence.

Warning: This video may include advertisements of an unspecified nature.

Watch the video Neurodiversity Explained

Neurodivergent Strengths

There are many variations of the human brain. Neurodivergence is an example of these variations, and can be labelled as Autism, ADHD, Dyslexia, Dyspraxia, and Specific Learning Difficulties.

What would happen if the world started recognising the strengths that come from these differences, as well as some of the challenges?

Being neurodivergent can help shape identity and allow people to interact and interpret the world in unique ways. Although there are challenges that can be created by this, there are also many incredible strengths that often come with being neurodivergent.

Below are some examples of strengths that are often possessed by neurodivergent people, and how these strengths may be useful when it comes to diabetes management!

Attention to detail

  • Often associated with Autism and ADHD.

  • This could aid tracking of food intake, careful blood glucose levels monitoring, and a precise approach to administering insulin.

Strong pattern recognition or visual skills

  • May help identify trends in blood glucose readings and anticipate potential issues.

Problem-solving and creativity

  • Neurodivergent people often approach problems with creative solutions; this could lead to innovative ways to adapt to diabetes management in everyday life. Creative routines or fun reminders can make management feel more enjoyable. This can be a great way to keep you engaged - especially for an ADHD brain!

Specialised interests

  • In particular aspects of diabetes (e.g. the technology behind it) can be a powerful motivator and help young people become an expert around their condition.

Tech Savvy

  • Having a natural aptitude for technology can also aid diabetes management!

Resilience

Resilience and determination can help neurodiverse young people when challenges arise during diabetes. Kindness is an important skill that is key to resilience. Being kind to yourself can help you face challenges with more confidence, which often leads to better emotional regulation when things are tough.

You can fill out your strengths by printing off the PDF

Impacts and challenges with managing diabetes specifically in the context of Autism.

Autism

We have already discussed some challenges of diabetes that can be common for an autistic person. For example, sensory sensitivities which may present challenges in hospital environments, eating, differences in how the body feels and wearing diabetes technology.

However, there are some other specific impacts that an autistic person may need support around:

  • An autistic brain is often very good at focussing on details; however, this can make autistic people more vulnerable to certain issues such as a fear of hypos/hypers. This could lead to them becoming preoccupied with over-monitoring blood glucose and they may not be able to recognise the impact this may have on their overall quality of life.

When autistic people become overloaded with stress or sensory stimuli, they can experience ‘shutdowns’ or ‘meltdowns’. This can lead to long-term exhaustion, reduced ability to function and heightened sensitivity. Living with diabetes can be frustrating and challenging, meaning it is not uncommon to experience autistic or diabetes burnout. This could have major impacts such as stopping looking after diabetes or trying to ignore it.

Impacts and challenges with managing diabetes specifically in the context of ADHD

ADHD

  • People with ADHD may find it difficult to focus, and Type 1 care tasks can be repetitive and boring without immediate pay offs. Therefore, ADHD brains may forget to do these tasks or find they are easily distracted.

  • It can also be difficult to plan and remember a routine around diabetes. Organising your environment can be tricky too, for example keeping your diabetes kit somewhere easy to find.

  • Impulsivity can create complications for diabetes management, for example, eating before taking a bolus insulin dose, guessing insulin amounts for bolus injections, snacking without injecting and overtreating hypos.

  • Emotional regulation can sometimes be a challenging aspect of ADHD. This means that issues like ‘diabetes distress’ and ‘diabetes burnout’ may be experienced when people with ADHD are managing strong feelings and stress around diabetes.

  • Many people with ADHD can become fixated on one thing and ignore other things they may need to do. This is called ‘hyperfocus’ and for someone with diabetes, it may look like ignoring glucose alarms, forgetting to eat, and finding it hard to remember to complete other type 1 management tasks.

  • Sleep problems can lead to disruption in people’s blood glucose

  • ADHD brains may struggle to pay attention and recall what they have been advised (e.g. in diabetes appointments). Relationships with others can be affected if this is misinterpreted by others as being ‘unmotivated’ or deliberately ignoring their diabetes when this isn’t the case.

Tips around support for sensory challenges while treating Diabetes

The following information will give you some ideas for what might help you when you are struggling with hypersensitivity or hyposensitivity during your diabetes treatments. It might be helpful to get a highlighter or coloured pen and mark the ones that you would like to try. You could keep a log of whether they help and add them to the clinic passport at the end. You can also take these ideas to your diabetes team and discuss how you can implement them.

Print off the PDF at the top of the page if you would like to highlight anything

Tips around support for Hypersensitive sensory challenges

Sight

  • Use screen dimmers on devices

  • Have a designated space for diabetes management

  • Use sunglasses or visors

Hearing

  • Switch alerts to vibration mode/softer alarm

  • Use headphones

  • Make most of the cues more visual than sound-based

Touch

  • Use numbing creams or cold packs before pricks/injections

  • Involve child in choosing preferred site locations

  • Experiment with different materials

  • Practice desensitisation through play (e.g. with toy medical kits)

  • Offer rewards post-procedure

Smell

  • Use unscented cleaning products

  • Encourage to breathe through mouth

  • Introduce an enjoyable/calming smell nearby (e.g. lavender oil)

Taste

  • Offer variety of different texture/flavours

  • Try glucose alternatives like juice or soft candy

Movement

  • Incorporate calming physical input (weighted blanket, fidget toys) into routine

  • Journal or map physical body feelings

  • Practice yoga/stretching

Balance

  • Use grounding techniques (weighted blanket/slow rocking)

  • Avoid rapid movement changes

  • Ensure physical safety in routines

Internal Body Signals

  • Mindfulness/grounding to interpret signals

  • Use calming routines that incorporate a symptoms tracker

Tips around support for Hyposensitive sensory challenges

Visual

  • Use bold, high-contrast visuals or screen overlays

  • Place important devises in easily visible areas

Hearing

  • Use multi-sensory alerts (sounds and vibration)

  • Increase volume

Touch

  • Perform regular skin checks (mirrors could be used to support this)

  • Establish a consistent routine for site rotation

  • Use timers to prompt attention to body areas or body mapping activities

Smell

  • Rely on visual cues (labels, expiration dates)

Taste

  • Create a meal plan with strong flavours included - diabetes dieticians can help you with this!

  • Record blood sugar responses to preferred foods and discuss with diabetes team.

Movement

  • Use visual checklist for positioning or gentle alarms for posture/movement

  • Schedule physical body awareness breaks

Balance

  • Do movement-based blood sugar checks (e.g. walking in place or balancing on one foot to detect dizziness/unsteadiness)

Internal Body Signals

  • Set alarms for meals, hydration and sugar checks

  • Use wearable devices with alerting systems

  • Teach recognition through visuals

Tips around Support: Regulating activities

We have mentioned ‘internal body signals’ as a sense a few times in this booklet. The proper word for this sense is ‘Interoception’. For ‘movement’ and ‘balance’ we can use the word ‘Proprioception’  

Children and young people dealing with diabetes can often feel sensory and cognitive overwhelm a lot more frequently and intensely than others. This is often due to the constant nature of treatment. Young people with diabetes do not get to have a break from managing their condition! It is common for this overwhelm to lead to dysregulation. 

When young people are dysregulated, proprioceptive regulating activities can help (activities that involve the sensations that occur with different body movements). Some examples of proprioceptive activities are…

  • Swimming

  • Stretching/yoga

  • Using a weighted blanket

  • Weight baring on hands               

  • Squeezing (e.g. fidget toy)          

  • Trampolining              

  • Chewing (e.g. chew toy or chewy foods)

Tips around Support: Mindfulness/ Relaxation techniques

Diabetes management can be frustrating and stressful. Sensory sensitivities can also be very overwhelming. 

Therefore, it may be helpful for young people juggling these aspects (and the people supporting them) to try to practice some relaxation techniques or mindfulness.

Different approaches work for different people. Here are a few techniques you can try. Scan the QR codes to find helpful videos and websites that will guide you through the exercises.

Warning: This video may include advertisements of an unspecified nature.

Tips around Support: Mindfulness / Relaxation techniques

5, 4, 3, 2, 1 Grounding Technique

This quick grounding exercise can be effective in calming the body and can be done anywhere!

This technique can engage all the senses, or you can tailor it to whichever ones you choose to use. 

It may not work for everyone; however, hypersensitive people may find it beneficial as it provides a structured way to navigate overstimulation and calm the body when feeling overwhelmed. Hyposensitive people may find the exercise a useful opportunity to pay attention to and engage their senses.

5 things you can see

4 things you can feel

3 things you can hear

2 things you can smell

1 thing you can taste

High-Low-Buffalo

This is a reflective conversation game that can be done together. It could become a fun part of a daily routine or be a tool to help process emotions and share experiences in a structured way. 

How to play and examples:

High - Highlight of your day 

  • something you are grateful for

  • an achievement

Low - Most challenging part of your day

  • something that disappointed you

  • an upset feeling you experienced

Buffalo - Something interesting

  • something funny (e.g., a joke)

  • a fun fact

  • something unexpected or unusual from your day

Hospital or Clinic Passport

Filling out a hospital/clinic passport can help you communicate specific needs and preferences. This can include making people aware of sensory sensitivities you may experience in hospital or whilst at clinic.

Print off the PDF at the top of the page for a hospital/clinic passport specifically designed around type 1 diabetes management. This could be filled out alone or with a trusted person (e.g. parents/carer).

Other Resources / Padlets:

This document has been prepared by Phoebe Blackman, Zoë Haines, Dr Cheryl Hunter, and Dr Georgina Davis. And has been reviewed by young people and families with lived experience.

Sources used:

  • DigiBete

  • Breakthrough Type 1

  • Autism Speaks

  • Diabetes UK

  • The American Diabetes Association 

 

Other formats

If you need this leaflet in another format such as Braille, large print, high contrast, British Sign Language or translated into another language, contact the Patient Advice and Liaison Service (PALS):

Was this page helpful?

Was this page helpful?
Rating

Please answer the question below, this helps us to reduce the number of spam emails that we receive so that we can spend more time responding to genuine enquiries and feedback. Thank you.

*

Our site uses cookies to help give you a better experience. If you choose not to accept these cookies, our site will still work correctly but some content may not display. You can read our cookie policy here

Please choose a setting: